Communities
Find a support group in your community
There are many organizations created to help families living with Duchenne.
PTC PEER NAVIGATOR PROGRAM
This program connects you with other families familiar with EMFLAZA® who can provide you with the support and guidance you need to better understand your child’s treatment.
To be connected with a PTC Peer Navigator, email peernavigator@ptcbio.com or call 1-866-282-5873.
CureDuchenne
This nonprofit organization supports Duchenne-related research and features events, workshops, and webinars on their site. Visit www.cureduchenne.org to learn more.
Muscular Dystrophy Association (MDA)
There are over 150 MDA care clinics in the United States and Puerto Rico, with each location home to a full team of healthcare professionals. To find a specialized MDA clinic near you, visit www.MDA.org/locate or call (800) 572-1717.
Parent Project Muscular Dystrophy (PPMD) Certified Care Centers
PPMD centers provide comprehensive care and services specifically for people living with Duchenne muscular dystrophy. These centers strive to provide accessible and comprehensive care to as many patients and families as possible. Centers certified by PPMD can be found at www.parentprojectmd.org/carecenters.
PTC does not warrant, whether expressed or implied, that the list of centers is accurate or complete. PTC does not recommend or endorse any center, hospital, or healthcare professional included above for any purpose, nor is the list to verify a center’s, hospital’s, or specific healthcare professional's credentials or qualifications. It is your responsibility to select a center, hospital, and/or healthcare professional appropriate for your needs, and you assume full responsibility for your interactions with any center, hospital, or healthcare professional you contact through the center list. PTC is not responsible for the medical care or advice given by any center, hospital, or healthcare professional you choose to contact.