FIND THE SUPPORT YOU NEED
We know that there is more to treatment than just taking care of symptoms. You and your family also have your own individual interests and support needs. Advocacy Groups in your community are available to support you and your family. There are also PPMD Certified Duchenne Care Centers and MDA Care Centers that can help your child access necessary treatment.
Advocacy groups in your community
Advocacy groups play an important role in helping you connect and bond with other people affected by Duchenne muscular dystrophy as well as giving patients a public voice. Connect with advocacy groups, such as the 3 listed below, and watch your support system grow.
PPMD CERTIFIED DUCHENNE CARE CENTERS and MDA Care Centers
PPMD Certified Care Centers provide comprehensive care and services specifically for people living with Duchenne muscular dystrophy. The goal of these centers is to make comprehensive care available and accessible to as many patients with Duchenne and their families as possible. The centers that have been certified by PPMD can be found on their website: parentprojectmd.org/carecenters.
PTC does not warrant, whether expressed or implied, that the list of centers is accurate or complete. PTC does not recommend or endorse any center, hospital, or healthcare professional included above for any purpose, nor is the list to verify a center’s, hospital’s, or specific healthcare professional's credentials or qualifications. It is your responsibility to select a center, hospital, and/or healthcare professional appropriate for your needs, and you assume full responsibility for your interactions with any center, hospital, or healthcare professional you contact through the center list. PTC is not responsible for the medical care or advice given by any center, hospital, or healthcare professional you choose to contact.
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